Managing my medicine in the month before and now after my surgery has been difficult. I had to stop taking my lupus meds, my aspirin for my blood clots, and my ginger root for my nausea from my lupus meds. I also had to get smaller anti-seizure pills for after my surgery because of the … More Medicine Drama
I spent yesterday with a raging migraine. Well, to be honest, it had been growing for days. … More It never ends
After the disaster of yesterday I managed to get to both of my doctor appointments today. I was exhausted because I had to take my morning meds last night, so nothing helped me sleep, so I only got about 2 hours of the glorious unconscious time. I was still good at answering the necessary doctor … More Zoom… maybe?
I have been trying for the last month to maintain a positive attitude while I have been recovering from pneumonia. I did finally get off of oxygen on Friday. Being on oxygen was one of the hardest things for me. Staying home, and dragging a tube around the house with me everywhere for a month … More Trying to stay positive
At the end of May 2014 I had quit my job. I had always had a job since high school. It was a very strange feeling. I was planning to look for a part-time job after spending the summer with my kids, but I was also terrified of not being employed. The summer with my … More Catching Up Part 4: Staying Home
In January 2013 I was newly diagnosed with epilepsy, and I had just been converted from a contractor to an employee at my job. What I should have done was take some time off to learn about my disease, and find some steady ground for myself and my family. What I did was to charge … More Catching Up Part 2: Epilepsy, Lupus, and Moving
In 2012 my life was running smoothly. Well, as smoothly as a life can be with two young kids in school, two parents with full-time jobs, and all of the excitement that comes with those things. I had been diagnosed with Mixed Connective Tissue Disease after my second daughter was born in 2007, but it … More Catching Up Part 1: The beginning of epilepsy