In the past few years many doctors have told me to stop consuming caffeine. … More Caffeine – you seductive, evil bastard!
I spent yesterday with a raging migraine. Well, to be honest, it had been growing for days. … More It never ends
This week I had doctor appointments and procedures scheduled every day, and even a few times per day in a couple of cases. … More Give Myself a Break
I have joined a lot of support sites for all of my diseases over the last few years. They are great places to find support on days when you are feeling down, a great place for advice when you have no idea what’s going on, and a good place to look when you need to know that other people are going through the same thing that you are. … More A Support System That Matters
If I could be paid to read books, I think I would die happyThese last couple of weeks have been a bit of an adventure. Last week I figured out that my eyes work well enough for me to read for long periods of time again, so I lost control and read six books. This week I got my drivers license back after a year and a half without driving (bite me, epilepsy.) … More To work, or not to work (yet)
Our insurance changes so often these days I’ve just learned to go with the flow as I change primary care doctors. I’ve managed to keep my specialists the same over the years, but I change primary care doctors ever year-ish. My new doctor is fantastic! I like him. He is very decisive, and sends me off for the tests that I need, and off to the new specialists he wants me to see without a lot of drama. Also, I’m getting my yearly physical therapy bonus. Woohoo! … More New Year, New Doctors, New Diagnosis
After the disaster of yesterday I managed to get to both of my doctor appointments today. I was exhausted because I had to take my morning meds last night, so nothing helped me sleep, so I only got about 2 hours of the glorious unconscious time. I was still good at answering the necessary doctor … More Zoom… maybe?
Today has been a day of everything going wrong, and it isn’t even noon. I am putting myself in a safe place, and staying there for a while to keep things from getting worse. It started when my alarm didn’t wake me up, I had to use a giant wrench to open our driveway gate … More When nothing goes right find a safe place
I have been struggling lately as I wait to feel better. My family wants me to be better, but I have been hearing a lot of the same advice from all of my doctors. Be patient. They tell me this because I want to be well, I want to be over pneumonia, but they tell … More Special Circumstances
I have been trying for the last month to maintain a positive attitude while I have been recovering from pneumonia. I did finally get off of oxygen on Friday. Being on oxygen was one of the hardest things for me. Staying home, and dragging a tube around the house with me everywhere for a month … More Trying to stay positive