So the interesting things about being in a situation like mine, and having a plague of invisible illnesses is that people will often ask you how you are doing. The immediate answer is, “Fine.” This is complete bullshit. Sometimes, if I know them, or if like today, it’s my kid’s doctor, I give them a … More But you look good…
I had planned to write only during the week, but my oldest daughter is developing a cold, so we are sitting here watching awful cartoons, and I don’t want to finish my chores. My husband and I took our kids to see Kelly Clarkson this week. The kids are in a singing and dance group, … More Holy crap, I like pop music!
I decided to start blogging again because I want to communicate with the outside world, with people who suffer from the same ailments that I do, to push my brain to work every day, and to re-learn some of the skills that have fallen by the wayside this last year. I ask that you forgive … More Why do I blog?
After my seizures started again in October 2014, it was difficult for me to bounce back. The dosages on my anti-seizure meds had to go up, and I had to try new meds. My lupus symptoms got worse. I started having flares, and was not able to get out of bed every day. I’m sure … More Catching Up Part 5: Waiting, wanting, and trying new things
At the end of May 2014 I had quit my job. I had always had a job since high school. It was a very strange feeling. I was planning to look for a part-time job after spending the summer with my kids, but I was also terrified of not being employed. The summer with my … More Catching Up Part 4: Staying Home
The sudden onset of epilepsy, my inability to drive, the decision to move, and all of the things that went along with those things caused quite a bit of fallout in every part of my life. My kids witnessed some of my first seizures, and were terrified for my safety for months after that. My … More Catching Up Part 3: Fallout
In January 2013 I was newly diagnosed with epilepsy, and I had just been converted from a contractor to an employee at my job. What I should have done was take some time off to learn about my disease, and find some steady ground for myself and my family. What I did was to charge … More Catching Up Part 2: Epilepsy, Lupus, and Moving
In 2012 my life was running smoothly. Well, as smoothly as a life can be with two young kids in school, two parents with full-time jobs, and all of the excitement that comes with those things. I had been diagnosed with Mixed Connective Tissue Disease after my second daughter was born in 2007, but it … More Catching Up Part 1: The beginning of epilepsy